An a-ha moment about my daughter

 

I have written about celiac disease and gluten intolerance on this blog before, but I have not talked about food allergies. I didn’t know how serious food allergies could be until my daughter’s lips swelled after contact with someone who had been eating cashews. She was two and a half at the time and I didn’t know anyone with food allergies. Looking back, I feel lucky that the worst didn’t happen since we were in Mexico without proper medication. It was after that incident that I began to take food allergies seriously. It was an ‘a-ha’ moment: food allergies are real. And scary.

She’s six years old now and this year we’ve had a few episodes that have confirmed that she has food allergies. Last summer I watched her have an anaphylactic reaction to eggs during a food challenge in the allergist’s office. It was like a science experiment as I watched the symptoms happen before my eyes – hives popping out, skin flushing red, coughing, and anxiety attack. That same summer she reacted to eggs in a sauce at a restaurant during a family vacation. Then only two weeks into the school year she unknowingly touched peanut butter on the shirt of another student, and ended up having a reaction, most likely after putting her fingers in her mouth (a habit that a food allergy kid needs to break!) This was another wake-up call that her food allergies are real.

So, what’s a parent of a food-allergic child to do? Not mope! Instead, I just do, as a parent would in the same situation. I try to keep her safe, I try to educate others, and I make a lot of special treats! Do I wish I could saunter into a restaurant with my family and order off the menu without asking a million questions? I do. Do I wish I could drop her off at a birthday party, wave goodbye and not even think about what food they are serving? Of course I do. I’d love to take her to a friend’s house and not do a demo of the Epi-pen to the other mom while standing in the doorway. But that’s not my reality and it never will be.

So in the meantime, I scrutinize labels and I cook – a lot. Nothing fancy, mind you, just fresh and healthy ingredients. Though my daughter’s diet is limited, it is at least pure. Oh, there are the treats of course, but even those are made with organic and all-natural ingredients.

Sometimes I worry that she feels deprived. But then I see her do a perfect cartwheel in gymnastics, try her hand at writing a poem, or giggle with her sister, and I realize that a-ha! Nourishment is not just about the food. Love, patience and encouragement are always allergen-free!

Thanks to Attune Foods for making cereals that my daughter can enjoy – they truly are staples in our house.

 

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  • http://healthymamarama.blogspot.com Kristen

    Great post and so true. Nourishment is not just about food. :)

  • Skye

    Great post! My son has Celiac disease and a nut allergy. He used to eat peanut butter and jelly often, when he was a todler, and never had a reaction. He had not eaten any peanut butter in about a year and I had honey peanut butter he wanted to try. I gave him a taste off the tip of my finger thinking not to give him too much because he might not like it. About 2 minutes later his face and mouth were swollen! Of course I contacted the doctor right away and Benadryl did the trick. He has an Epi-pen now but I freak-out thinking about how bad it could of been had I given him more. There are so many foods out there that are not safe for some, allergies, gluten, dairy….the list goes on. With my son, we just focus on the things he CAN eat and not what he can not eat. You find out it’s not that bad and that was my “a-ha” moment.

  • http://surefoodsliving.com Alison St. Sure

    Thanks Kristen!

    SKYE,
    I agree — focus on the CAN not the CAN’T… I find it’s easy at home, but when we go out I’m reminded how much harder it is.

  • http://glutenfreeeasily.com Shirley @ gfe

    Terrific post, Alison! Love the part about not moping. One might do it for a very short time, but then it’s time to move on and do what you gotta do, so to speak. I cook daily, but I don’t spend hours doing it and I know you follow the same approach. It doesn’t have to be hard, just different than what is normally expected for the SAD and that’s a good thing! Your daughter is beautiful, Alison. She’s got her mom’s brown eyes, but hers are so big, even doe-like in that photo. :-)

    Shirley

  • http://surefoodsliving.com Alison St. Sure

    Shirley,
    Thanks for your comment! BUT, the photo is a stock photo that they put with my post – she’s a cute kid, but not mine! I sent a pic of my real daughter but I think they forgot to update it. My daughter has blue eyes, just like me! :)

  • http://frugalfoodallergies.com Lindsey

    Allison,
    I love this post! Focus on what you can have rather than what you can’t is the best tip you can offer in my opinion. It’s vitally important actually. It sounds like you’re a great momma :-) And by the way, your little lady is gorgeous!

  • admin

    Alison- if you can please resend the photo, I tried uploading it and had issue with graininess. Thanks in advance and sorry for that discrepancy.

  • http://surefoodsliving.com Alison St. Sure

    Okay, they changed the picture — the one with the sunglasses IS mine! :)